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Hansen's disease - Rehabilitation/Normalization 「社会復帰」 [2012年04月28日(Sat)]
東村山の国立ハンセン病資料館の2012春季企画展
青年たちの「社会復帰」 ー 1950-1970 ー
が、今日から始まった。
日本のハンセン病問題のなかで、社会復帰が取り上げられることは少なかった。それだけに、期待される。
早速、毎日新聞の記事が英訳され、グーグルで世界に配信された。短い記事ながら、社会復帰の表と裏を指摘している。日本は、ハンセン病自体は過去の病気となった国の一つだけれど、世界でも例外的にハンセン病がメディアで取り上げられることが多い国。しかし、全て国内報道にとどまり、海外に発信されることは極めてまれであるだけに、英文毎日の報道は意味がある。

同展示は、2012年4月28日(土)〜7月29日(日)まで。
(下記、英文毎日の企画展に関する報道を紹介する)
Tokyo exhibition shows Hansen's disease patients' struggle for normal life
A rare exhibition depicting leprosy patients' struggle for normalcy in the face of prejudice is on at the National Hansen's Disease Museum in Higashimurayama, western Tokyo.
The exhibition, called "Seinen tachi no 'shakai fukki'" (Young men's reintegration into society), traces the lives of 11 Hansen's disease patients, who in their youth chose to leave the sanatoriums where they were being treated to pursue a normal life, despite strong prejudice against the disease in Japanese society.
The 11 people, most of whom are now in their 70s or 80s, were treated for Hansen's disease in the 1950s, when chemotherapy began to spread as a common treatment for the disease, resulting in significant improvements in patients' conditions or even full recovery.
The exhibition is based on interviews, photographs and other resources that depict the lives of the 11 people and their struggle to fit into society after leaving the sanatoriums in their 20s or 30s. The exhibition material was collected by the museum's curator Naoko Nishiura, 40, starting in the summer of 2011. She interviewed a total of 20 people across Japan, and the 11 agreed to be featured in the exhibition.
Among the 11 people is an 83-year-old man from Kagoshima Prefecture who left a sanatorium to follow his dream of having a family of his own, and later opened a Chinese restaurant in Osaka Prefecture.
"The more popular the restaurant became, the more tense I got," he recalls, reflecting on the torment of spending a life of hiding his illness. "I used to worry about what would happen if people learned of my disease. I used to worry about my children, too."
Another man, 76, conveys a profound sense of isolation, saying, "Even if standing amid the hustle and bustle, amid crowds of people, now if I had to say what I am, I'd say I am lonely."
According to museum officials, from the 1950s to the '70s, a number of young men and women suffering from the disease increasingly left sanatoriums after their conditions had improved, and rejoined society. The peak was in 1960, when some 230 people left the facilities.
However, many of them who had grown tired of hiding their illnesses amid people's prejudice against it, or who had feared a potential relapse, later returned to the sanatoriums.
"I hope that by learning about those who have taken the challenge of returning to society, people will take the opportunity to notice the prejudice and discrimination that may be hiding inside them," says Nishiura.
The exhibition runs through July 29. Admission is free.
April 28, 2012(Mainichi Japan)
Posted by Blue Sky at 23:16